Braylee Butterflies Family Assistance Fund.
In the rare disease community, nearly half of all families report needing to borrow money from friends and family to pay for treatment. That is often after exhausting medical benefits and personal savings. Equipment and therapy can be expensive and beyond the insurance or medical aid benefit. Furthermore, parents and caregivers often report significant time away from work for doctor visits or hospitalizations.
The trauma of living with a rare disease can be devastating to a family. No one should have to worry about the mounting medical costs of treatment and travel associated with treatment. Braylee's Butterflies Family Assistance Fund can help eligible families receive aid for:
- Medical food
- Bathroom Adaptations/Equipment
- and more
Donation to family may also be matched by With Angel Wings assistance fund.
Families Braylee's Butterflies Family Assistance Fund has been honored to support:
- Lauren and Maleah Schubert and family - Hereditary Chronic Pancreatitis.
- Q1: 3 families whom wish to be anonymous
- Q2: 1 family whom wishes to be anonymous- undiagnosed genetic disorder.