Braylee Butterflies Family Assistance Fund.

In the rare disease community, nearly half of all families report needing to borrow money from friends and family to pay for treatment. That is often after exhausting medical benefits and personal savings. Equipment and therapy can be expensive and beyond the insurance or medical aid benefit. Furthermore, parents and caregivers often report significant time away from work for doctor visits or hospitalizations.

The trauma of living with a rare disease can be devastating to a family. No one should have to worry about the mounting medical costs of treatment and travel associated with treatment. Braylee's Butterflies Family Assistance Fund can help eligible families receive aid for:

  • Medical food
  • Mileage
  • Wheelchairs
  • Bathroom Adaptations/Equipment
  • Travel
  • and more

Donation to family may also be matched by With Angel Wings assistance fund.

Q4 of 2022 Financial Assistance Application is due on Dec 15th
Q1 of 2023 Financial Assistance Application is due on March 1st
Q2 of 2023 Financial Assistance Application is due on May 10th
Q3 of 2023 Financial Assistance Application is due on Sept 6th
Q4 of 2023 Financial Assistance Application is due on Dec 13th
*Families will be notified around 4 weeks post application deadline 
Since starting this fund in Fall of 2020, Over 3500 dollars has been provided to families in need for medical expenses.


Families Braylee's Butterflies Family Assistance Fund has been honored to support:


  • Lauren and Maleah Schubert and family - Hereditary Chronic Pancreatitis. 


  • Q1: 3 families whom wish to be anonymous
  • Q2: 1 family whom wishes to be anonymous- undiagnosed genetic disorder. 
  • Q3:
  • Q4: