Bold, Brave and The Change

  • Be the change- ADVOCATE!

    With over 7,000 known rare diseases, it is difficult for anyone to have an in-depth understanding of the rare disease community. This lack of aware...
  • #BeThechange

    -- inspired by Braylee She taught us to live with our whole heart, see gratitude in every day as everything was “going to be ok", to always be BOLD...